I apologize for how long it has been since I have posted. School is about to start, and preseason, preparation, and family have kept my busy.
In the coming weeks, I will be doing the Parent Perspective segment that I have previously promised. The one that I will be posting today was written by my mother, and is Part 1 in a short series.
Here it is:
No one expects a child to have a stroke. Much less three. All before the age of 8 years old.
The first one seemed innocuous enough. He says that his arm feels funny. Maybe his arm fell asleep. Maybe he doesn’t have the words to properly describe what that feels like. But it does seem strange that he feels like he can’t move his arm…
The second one seemed like a case of sleep walking and talking. Why are his words all jumbled up? Is he speaking gibberish in his sleep? But he looks wide awake and seems like he thinks what he is saying makes total sense. “Go back to sleep to honey.”
The third one seemed like a case of his legs falling asleep. But then while walking to the bathroom to brush his teeth, he started to stumble and fall. I picked him and propped him up on the toilet seat so that he could brush his teeth. He slumped and I had to grab him before his head hit the sink. Something was definitely wrong.
This started the journey of trying to figure out what exactly was wrong. From the spring of 2008 to the fall of the same year, we saw what seemed like an endless stream of doctors from neurologists and neurosurgeons to neuroradiologists to hematologists and cardiologists and infectious disease doctors. No one seemed to know what was wrong with Reddy. In fact, the pediatric neurologist that we were seeing had the audacity to suggest that the symptoms that Reddy was exhibiting (which we later learned were TIAs) were the result of an over-active imagination.
At this time, Reddy seemed like a totally normal and healthy boy outside of the fact now his arms and legs would go occasionally (and increasingly more often) go “numb” and give out. I wanted to believe the pediatric neurologist, but i knew two things about my son- 1) he would never miss out on summer vacation to willingly subject himself to what seemed like never-ending visits to hospital waiting rooms, blood draws, tests, scans, doctor interviews and 2) my son did not have THAT active of an imagination.
I wanted to believe that doctor and give Reddy a break from hospitals and tests. Maybe it was me who was making Reddy think that something was wrong with him by taking him to all these doctors. He looked so normal. Healthy. But then his arms and legs would go “numb”and I knew something was definitely wrong.
THANK YOU for reading and see you again!!!!!